Brochures on Rare Disease Day 2/29/12

I will be handing out brochures for the Heterotaxy Hope Organization (H2O)on Heterotaxy Syndrome on Rare Disease Day! Please join me on Wednesday, Feb. 29th, 2012 from 6 to 9 pm at the Alpine Country Club, 251 Pippin Orchid Road, Cranston, RI 29210. The Rhode Island Rare Disease Foundation is having an awareness event for Rare Diseases. There will be food, music, and dancers. RIRDF also invited several local politicians to attend. It is open to the public. For more information on the event please contact RIRDF via email: riraredisease@verizon.net or visit http://rarediseaseday.us/events/events/ for information on events being held on Rare Disease Day (2/29/12) in area.