It is so unfair

One of the hardest things about belong to a support group is hearing the sad news from a parent who lost their beloved child from this multifaceted syndrome. I find it hard to finish reading the heart wrenching posts from parents. It is just so unfair. I also have a tough time dealing with the fact that so many babies who are born with Heterotaxy Asplenia or Heterotaxy Polysplenia won’t get a to make it to their first birthday. A couple of weeks back I heard the heartbreaking news that another baby lost their life due to complications after BT Shunt surgery. My prayers and my heart go out to the family. I wish I knew the right words to express to her how sorry I am for her loss.