Why Do I Blog

I blog because I believe that one person can spread the word. My hopes are that someday the medical community will have answers to this multifaceted syndrome that Chloe and other children have. I blog because it helps me to face the reality of what it means to have a child with a syndrome. I know that Chloe is extremely lucky because she could have the syndrome a lot worse and she is was one of the few that will be able to make it to adult hood and beyond. I blog for the parents searching for other children like their own to have some type of an insight of what it is like to have a child with Heterotaxy Syndrome. The hardest thing to understand is that no 2 children are the same. Children born with Heterotaxy Syndrome are so different from each other. Yes, I know I am lucky because Chloe has a good prognosis but along the way she may have obstacles to over come. But, I still feel the need to spread the word around the world.