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We have been so busy with Chloe and her doctor’s appointments. We final got an answer has to what has been going on with my daughter. It only took 3 years of me pushing and pushing for doctors to listen to me. Children’s Boston Hospital is calling it Heterotaxy asplenia (levocardia with abdominal situs inversus). Due to the polysplenia, she should have precautions for functional asplenia. Anyways, they said they think it has do with Cilia from the beginning at the embryo stage. Therefore, now they are looking into Kartagener Syndrome too. I guess to see if she has the gene for it. I have been told she is one of the lucky ones because she does not have any heart defects. She is having an upper GI done next week. So it’s my belief she is one of the 10 percent (Lucky ones) that will make it into Adult hood. What Chloe has is so rare that a lot of doctors are lucky if they see 1 or 2 kids with it. Anyways the Immunologist today said that Chloe is her 4th patient that she has seen with it.