Today's Visit

Today Chloe had an Abdominal Ultra Sound followed by a GI appointment. Today was the first time I actual read Heterotaxy with Polysplenia on paper not just any paper but a hospital one. It hit home that my daughter really has this. I wanted to cry but I had to hold myself together for my daughter. My daughter through this all has been so calm and adult like. She is truly my champ. The GI doctor put her on Prevacid for a whole year and wants her to see a nutritionist. Chloe will also be having an upper GI done. I know Chloe is a lucky girl and I hope that lucky continues but gosh this is so hard to take in. I asked the GI doctor so how many patients have you seen what Chloe has. He replied she is the 1st one. This is where my cross road takes me today. Do I stay with him or do I find one who has some knowledge of what Chloe has. The answer to this is that I stay with him since I got a very good vibe from him. I could see it in his eyes that he really cares and wants to do best by her. It felt right so I’m going with my gut on this. Chloe life from now on will be filled with appointments. I hope each specialist I see will have the same caring eyes that I saw in the GI doctor today. My hope and prays are that Chloe falls into that small percentage that makes it into adult hood. I know she will because she’s my Champ.