A 10 year old girl living with Heterotaxy - Polysplenia... Join me in my quest to find answers to my questions as I learn about heterotaxy.
Wednesday, February 20, 2008
Special thank you to Laura
I spoke to a mother out in Canada whose son has what Chloe has not the same but close. What a happy person and so caring. All I can say is Wow I really admire her. She said to me, “God must trust that you are the right mother to care for her, to love her and to teach her. God only gives us what we can handle...or from what we can grow and learn. ...perhaps you will help one other person and that is you’re calling as a mother of a very special and unique little girl. Who knows? But I believe god only gives us special little ones when we are special too. Hold onto that my dear friend.” Those are words that I am going to live by. I just wanted to share that with all you because I found that it helped me when I needed it. I hope she truly knows how much she helped me and if you are reading this please now it meant so much to me and you have helped this mother out. God Bless Laura and her Family. Laura your family is truly lucky to have.
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My dear, thank you for such kind words. You and little Chloe are in my thoughts and prayers every day.
Stay strong and be sure to take care of yourself, when you are well, you can care for your child.
One doctor explained it to me that at 8weeks the organs of the body are transported by a conveyor belt to the right position and the flip into the right spot. Isomerisms occur when the conveyor belt is not strong enough and the organ gets off to soon, or in the wrong position. Then, that weak conveyor belt becomes the cilia of the lungs. So, if it was too weak to flip the organs in the right spot, then it may be too weak to clear the crappy stuff out of the air as we breath - resulting in infections and coughs etc.
Not sure if that makes sense to you, but it helped me.
Sending you lots and lots of love and support. May answers be near and hope around the corner.
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