I would like to share with you an email that I received from a parent. As you all know, I believe that it is important to “HELP” spread the awareness of Heterotaxy with Polysplenia, Asplenia, or Functional Asplenia. Thank you for helping me spread the word. Please take the time to visit Billy’s website for more information on his syndrome.
From an anonymous parent, "Our son Billy was born on Jan 22, 2008 with heterotaxy. He is bi-lateral left-sided (polysplenia with functional asplenia - he has 5 little spleens), a midline liver, no gall bladder, stomach on the right side and multiple heart defects. He received a heart transplant on Feb 21, 2008 and is going great. If you are interested go to www.caringbridge.org and type in babyjohnson1 for our site."
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